The Promise of Participatory Evaluation in Family-Centered Rehabilitation Settings: A Qualitative Study

Abstract

Background: Family-centered service philosophy (FCS) is an important contextual aspect of many pediatric rehabilitation programs. It recognizes the importance of supporting family relationships and the benefits of active family participation in all aspects of programming. Unfortunately, many professionals often overlook FCS philosophy when designing and implementing evaluations. Given the emphasis that participatory evaluation places on collaboration and the engagement of stakeholders, it appears to be theoretically compatible with FCS philosophy.  

Purpose: To explore parents’ and staff members’ perceptions of participatory program evaluation, including its congruence with family-centered service (FCS) philosophy, as well as the feasibility and practicality of using participatory program evaluation within pediatric rehabilitation centers.

Setting: The study was conducted at two urban pediatric rehabilitation centers in Ontario, Canada.

Intervention: Not applicable.

Design: Qualitative exploration.

Data Collection and Analysis: The study included qualitative interviews, focus groups and a thematic analysis.  

Findings: Participants described how participatory evaluation, in congruence with FCS philosophy, would increase the relevance of program evaluations for families, help support program interventions, assist in the development of clinician-parent relationships, and facilitate the empowerment of families. They also described how a lack of time, funding, and training, as well as variations in the priorities and interests of families presented challenges for using participatory evaluation within their centers.